by Celena Lozano | Oct 22, 2025 | Networking/Outreach, News, Newsletter
Last month, our board member Celena Lozano had the opportunity to attend the COMBINEDBrain Annual Summit. This gathering included patient advocacy groups (like the PSF), researchers, and industry partners all working toward the common goal of fast-tracking treatments...
by PURA Syndrome Foundation | Oct 5, 2025 | Networking/Outreach, News, Newsletter
Chicago Monogenic Epilepsy Summit (CHIMES) In July, Drs. Doug Nordli Jr. and Sam Volchenboum, in partnership with Data for the Common Good (D4CG) at the University of Chicago and the Chan Zuckerberg Initiative, invited the PURA Syndrome Foundation to the inaugural...
