Register now for the PURA Syndrome Conference, an event taking place June 26-28, 2026. Join researchers, experts and our PURA community for in-depth sessions that will focus on:
- Research and studies about PURA
- Parent Discussions
- PURA Community Social Time
- And so much more!
Registration is now open and required for all attendees. The conference and sessions are open to family, caretakers, researchers, clinicians, and friends. For those unable to attend in person we will also offer a virtual option, and many of the sessions will be recorded to view at a later date.
**EARLY BIRD REGISTRATION**
(Discounts apply to adult tickets only)
January 1 – Rare Disease Day (February 28): Adult tickets are only $80 – use code EARLYBIRD26 to get your discount
March 1 – April 30: Adult tickets are $90 – use code EARLYBIRD26 to get your discount
May 1 – June 28: Adult tickets are $100
Please note: We have tried to keep costs low so that more people would be able to attend. If you are able to give more than the required fee, we encourage you to do so to help offset the conference costs.
Book your room at the Conference Hotel!
The conference takes place from June 26-28, however, we have a reduced rate from Thursday through Sunday night for anyone who would like to stay longer. Please click this link to book our Conference hotel.
For ADA-compliant rooms or rooms with connecting doors, kindly contact the Hotel Reservations Team at: reservation@himunich.com
If participants would like to reserve a twin room, they can also contact the Hotel Reservations team at: reservation@himunich.com
If you have any questions, please contact conference@pura-syndrome.org.
Please visit the conference website at https://puraconference.org for an outline of sessions and activities and additional information.
We hope to see you there!