We are thrilled that over 60 families will be participating in the PURA Syndrome EEG Research Study – so far!
Just a reminder that enrollment for this study will conclude on Friday, April 19th, 2019 and it is not too late to enroll.
The research study being spearheaded by Katrine Johannesen from the Danish Epilepsy Research Hospital in Denmark.
Additional information and details about the study can be found on our website: https://www.purasyndrome.org/eeg.
As always: THANK YOU for your help!
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