We are in need of sponsors to support our annual conference! In supporting this conference, you provide our global medical team the chance to come together and make plans for future research to benefit PURA syndrome patients. Funds will go directly to funding our annual conference. Your sponsorship is a wonderful way to show your support to families living with this rare disease. All donations and support are much appreciated. With your help, there is much hope for the future.

Click here to view our Sponsorship Opportunities

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