This year’s conference will be special in so many ways. One way you can participate is to feature your PURAPerfect Child or your PURAPerfect Relative in the conference program and online!

We are now offering families and friends the ability to purchase program ads. Your support is a great way to recognize a particular family and/or child and a wonderful way to support our PURA community of families living with this rare disease. All proceeds will go directly to funding our annual conference.

Here are the details:

Printed Program Ad $150 Full page

Printed Program Ad $100 Half page

Printed Program Ad $50 Quarter page

Deadline for photo submissions is May 20th.

Do you work for a company or know someone who would be interested in becoming a sponsor for our 2024 PURA Syndrome Conference? Pass along our sponsorship packet by clicking the link below! 2024 PURA Conference Sponsorship Packet

Please visit the conference website at for an outline of sessions and activities, hotel booking link and additional information.

Learn More & Register

We hope to see you there!

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