Attention PURA Siblings! You are invited to join us for zoom chats over the next month so we can get to know one another. Please keep an eye our your email for zoom links and if you aren’t yet signed up for our email list, visit purasyndrome.org/siblings to do so. Any questions, email siblings@pura-syndrome.org. Hope to see you there! #purasiblings #puraperfect
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Recent Posts
- Arrivals & Departures – September 2024
- PURA Syndrome 10th Anniversary: Significant Milestones Across the Decade
- Research Updates – September 2024
- The PURA Syndrome Foundation Recently Joined Epilepsies Action Network and Rare Epilepsy Network (REN)
- October 23, 2024: 10th Anniversary of the Discovery of PURA Syndrome!