[email protected]
Facebook
Instagram
Facebook
Instagram
JOIN US
DONATE
Understanding PURA Syndrome
PURA 101
FAQ
Glossary of Terms
For Families
Newly Diagnosed
PURA Family Support
Sibling Outreach
Ambassador Program
Resources
Clinician Network
Self-Care for Caregivers
Sibling Resources
Research
Published Research
Biobank
Global Patient Registry
Global Research Network (GRN)
Make an Impact
PURA Awareness
Volunteer
Donate
Fundraising
Together for PURA 2024
Shop
News & Events
Annual Conference
Newsletter & Updates
Event Calendar
Blog
About Us
Mission and Values
Our Team
Our Researchers
Select Page
PURA Conference: We are Family
by
PURA Syndrome Foundation
|
Jun 22, 2024
|
Annual Conference
,
News
Search
Search
Advocacy
(1)
Annual Conference
(29)
Awareness
(16)
News
(51)
Newsletter
(10)
Research
(12)
Resources
(2)
Siblings
(2)
Stories
(5)
Together for PURA 2024
(4)
Uncategorized
(1)
Recent Posts
Today is PURA Syndrome Awareness Day and our 10th Anniversary!
Remember our PURA Angels
Two Days Away!
Day 10: Share Your Story!
Day 9: Wear Blue on PURA Awareness Day!
Skip to content
Open toolbar
Accessibility Tools
Accessibility Tools
Increase Text
Increase Text
Decrease Text
Decrease Text
Grayscale
Grayscale
High Contrast
High Contrast
Negative Contrast
Negative Contrast
Light Background
Light Background
Links Underline
Links Underline
Readable Font
Readable Font
Reset
Reset