Wouldn’t it be amazing if PURA families got together to raise awareness in our communities and invite others to join us in our mission to support and drive research, as well as serve and empower families impacted by PURA Syndrome? WE can do this, and you can help! Many of you have indicated that you would like to host an event or do “something” to raise money. If we all do “something,” big or small, we will reach our goal!
On Wednesday, July 17, we will offer a two special zoom sessions hosted by board members Nancy Boccia and Melissa Vaught, on Everything You Need to Know to Plan a PURA Perfect Fundraiser. No fundraiser is too small and you can all be part of this. Our goal is to have 100+ teams…imagine what we can do!
Click here to register for the July 17, 10:30 am ET session
Click here to register for the July 17, 7:00 pm ET session
If you have any questions or are unable to attend and would like more information, please contact n.boccia@pura-syndrome.org. Hope to see you all there and get your ideas and questions ready!