One of the biggest questions we get from new families is how to find doctors familiar with PURA Syndrome. We’ve been compiling a directory of doctors known to us that see multiple PURA patients and are experts in their specialties. This serves not only to help our community connect with care, but also to help clinicians connect with each other to better care for their patients and support additional research. This directory can be found in the resources section of our website. If you have any clinicians that you think should be included, please contact us at president@pura-syndrome.org. #purasyndrome #puraawareness #purafoundation #puraperfect #togetherforPURA2024
