by Liz Astridge | Sep 9, 2023 | Research
Attention PURA Caregivers! Please see information below on an important study being done. Thank you for your time. My name is Janeyce McCray, I am a researcher at Weill Cornell Medical College in New York, New York. The research study I am conducting is in...
by Liz Astridge | Feb 25, 2023 | Newsletter
The February Newsletter is out! Please take a moment to read about the following headlines: A Letter from the Foundation Meet our new Board Members New Research Publication Annual Conference Save the Date World Rare Disease Day PURA Meet Ups Click here to read it,...
