by PURA Syndrome Foundation | Nov 9, 2023 | News, Newsletter
Did you know that October 23, 2024 will mark the 10th Anniversary of the discovery of PURA Syndrome? We are putting together a year-long celebration with monthly themes so stay tuned to social media and email for more details. Interested in helping? Please...
by Liz Astridge | Feb 25, 2023 | Newsletter
The February Newsletter is out! Please take a moment to read about the following headlines: A Letter from the Foundation Meet our new Board Members New Research Publication Annual Conference Save the Date World Rare Disease Day PURA Meet Ups Click here to read it,...