by PURA Syndrome Foundation | May 14, 2024 | Annual Conference
Anna will present a comprehensive course designed to support families of individuals with PURA Syndrome in initiating and facilitating communication using Augmentative and Alternative Communication (AAC) methods. This course provides an understanding of AAC...
by PURA Syndrome Foundation | May 13, 2024 | Annual Conference
Learn about the specialty of Developmental and Behavioral Pediatrics – a scarce but important provider bridge between the medical, therapy, and educational worlds. Dr. Weedon will discuss how to partner with your providers and advocate for understanding the needs of...
by PURA Syndrome Foundation | May 8, 2024 | Annual Conference
We’re counting down to the 2024 PURA Syndrome Conference in Chicago, IL which is only 44 days away! We hope to see you there!! Watch out as we highlight speakers and content over the coming weeks. A great way you can support the conference, while showing off the...
by PURA Syndrome Foundation | Mar 20, 2024 | Annual Conference
This year’s conference will be special in so many ways. One way you can participate is to feature your PURAPerfect Child or your PURAPerfect Relative in the conference program and online! We are now offering families and friends the ability to purchase program...
by PURA Syndrome Foundation | Jan 15, 2024 | Annual Conference, News
We are in need of sponsors to support our annual conference! In supporting this conference, you provide our global medical team the chance to come together and make plans for future research to benefit PURA syndrome patients. Funds will go directly to funding our...
by PURA Syndrome Foundation | Jan 14, 2024 | Annual Conference, News
Register now for the PURA Syndrome Conference, an event taking place June 21-23, 2024. Join researchers, experts and our PURA community for in-depth sessions that will focus on: Research and studies about PURA Parent Discussions PURA Community Social Time And so much...
